Dementia Caregiving Made Manageable: A Guide for Family Caregivers

By Kate Race 8  am On

Caring for an aging loved one with dementia can be deeply rewarding, but it’s also a role filled with unique challenges. Caregiving often goes beyond providing basic assistance. It involves emotional resilience, adaptability, and teamwork. This guide will explore the complex dynamics of dementia caregiving, offering actionable insights to help caregivers better manage their responsibilities while maintaining their own wellbeing.

The Two-Party Equation of Caregiving

When we think of caregiving, we naturally focus on the person with dementia. However, effective caregiving involves considering the caregiver’s needs, too. This balance is essential for preserving the caregiver’s health and ability to provide care over time.

Preserving the caregiver’s wellbeing ensures he or she can continue supporting his or her loved one. Including the caregiver in decisions, such as asking “How does this make you feel?” creates a healthier caregiving environment.

The Challenges of Dementia Caregiving

Effective caregiving for individuals with dementia demands patience, adaptability, and proactive planning. Here are some common challenges:

  • Taking on an unexpected role

Most caregivers enter this role without prior experience or training. Each case of dementia is unique, which means caregivers must stay flexible and adaptable.

  • A lack of a guidebook

Caregivers often face situations where common strategies simply don’t work. This requires a willingness to experiment, practice new approaches, and accept that not everything will go as planned.

  • Growing responsibilities

Every ability lost by the care recipient becomes an additional responsibility for the caregiver. Tasks like driving, grocery shopping, or decision-making now fall on the caregiver’s shoulders, requiring forethought about how to manage these increasing demands.

  • Isolation and fatigue

Caregivers frequently feel a sense of loneliness as they strive to protect their loved ones while juggling caregiving duties. Sharing responsibilities with others or involving a broader support system can provide much-needed relief.

Caring for senior loved ones can be challenging for families who don’t have expertise or professional training in home care, but this challenge doesn’t have to be faced alone. Family caregivers can turn to Assisting Hands Home Care for the help they need. We provide high-quality in-home care as well as comprehensive Alzheimer’s, dementia, stroke, and Parkinson’s care.

Key Considerations for Caregivers

Caring for someone with dementia isn’t just about what has to be done but also about what the caregiver wants, is willing to do, and is capable of doing. Caregivers should reflect on these core questions:

  • What needs to be done?

Anticipate future responsibilities, as dementia is progressive, and plan accordingly.

  • What do you want to do?

Consider the caregiving tasks you genuinely desire to take on and where you may need external support.

  • What are you willing to do?

Be honest about sacrifices you’re prepared to make, such as career adjustments or financial contributions.

  • What are you capable of doing?

Assess your physical abilities, emotional strength, and financial capacity to determine realistic boundaries.

Building a Caregiving Support Team

Caregiving doesn’t have to be a solo effort. Adopting a “village mentality” can provide tremendous benefits for both the caregiver and the person receiving care.

Create your support team by involving:

  • Family and friends People often want to help but don’t always know how. Assign specific tasks like yard work or running errands.
  • Doctors and specialists – Lean on medical professionals for guidance on managing care needs and planning for the future.
  • Support groups – Peers who share similar caregiving experiences can offer valuable emotional support and practical advice.

Overcoming Barriers to Asking for Help

Many caregivers hesitate to involve others, fearing it’s their sole responsibility or that asking for help may burden others. Instead, frame your requests as a way for people to support you in your caregiving role, which makes it easier for them to engage.

Navigating Stubbornness and Delusion in Care Recipients

Caregivers often face challenges when reasoning with someone experiencing denial or confusion. Here are some strategies to handle these situations effectively:

  • Indirect approaches – Focus on getting care needs met, even if it means creative solutions like labeling memory care visits as doctor’s appointments.
  • Necessity as a driver – Sometimes changes, such as moving to assisted living, become inevitable after a crisis. While this may be difficult, it is sometimes the most practical solution.

Many seniors prefer aging in place over moving to assisted living facilities. If your senior loved one needs assistance to remain safe and comfortable while living at home, reach out to Assisting Hands Home Care, a leading Columbus in-home care agency. Our dedicated in-home caregivers can assist with meal prep, bathing and grooming, exercise, medication reminders, and many other important tasks.

Caring for Yourself as a Caregiver

Remaining a compassionate and effective caregiver requires prioritizing your own wellbeing. Visits that only focus on caregiving tasks can leave you feeling depleted. Instead, make time to connect with your loved one in meaningful ways, even if traditional conversation isn’t possible. For example, enjoy shared hobbies, listen to music, or reminisce about old memories. Additionally, understanding the other roles you balance outside of caregiving, such as work or parenting, can help you better plan your time and emotional energy.

Caregiving for someone with dementia is a life-changing responsibility. However, it’s not one that should be carried alone. By building a support team, planning ahead, and maintaining your own health, you can ensure your loved one receives high-quality care while protecting your wellbeing.

If you’re embarking on caregiving, consider exploring resources like When Caregiving Calls by Aaron Blight, a guided journal specifically designed for caregivers. No matter where you are in your caregiving journey, remember this key truth: taking care of yourself allows you to take better care of your loved one.

Even when families have the best intentions, caring for a senior loved one with dementia can be challenging. Fortunately, Assisting Hands Home Care is here to help. We are a leading provider of dementia care. Columbus families can take advantage of our flexible and customizable care plans, and our caregivers always stay up to date on the latest developments in senior care. To create a comprehensive in-home care plan for your loved one, give us a call today. 

   

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    About the author

    Contributor

    Kate Race

    Kate Race, CDP (Certified Dementia Practitioner), is the Regional Director of Business Development at Assisting Hands® Home Care, bringing over 25 years of experience in senior care. Her journey began at 17 when she became a caregiver for her grandfather and supported her family through a loved one’s dementia diagnosis. Kate spent 14 years leading a memory care unit at Atria Summit Hills and now helps home care agencies grow with heart, clarity, and purpose. She also runs three Alzheimer’s Association support groups and starts every day with CrossFit in the Bluegrass State she proudly calls home.